Throughout the month we will be re-printing some of our members’ blogs about April, autism “awareness” and autistic pride. This post is by Rishav Banerjee from his blog, Autistinquisitor:
Autistic April Survival Guide
This is a message directed to all members of the Autistic Community. Note how I use the term “Autistic”, and not “Autism”. When I refer to the Autistic Community, there is a simple criterion one must fit to be a part of it: you must be Autistic.
This is meant to be a survival guide, a call to action, a sandbox of ideas, and more. It is meant to bring comfort, but also amusement and joy, in a month where we are often overwhelmed with stress, negativity, and fear.
Another year, another April. I think we’re all used to it by now, but we really shouldn’t be. At first glance, you may think the puzzle pieces and blue lights that signify “awareness” are somehow great. As the Autistic community continues to push toward acceptance and the neurodiversity paradigm, those who oppose it adjust their tactics accordingly, sometimes attempting to hide their true colours. They mask their ableism, and their desire for a world where we no longer exist.
Yet past the headlines and clickbait, what we really see is a horror show. This horror is not Autism, but peoples’ reactions to it. Tragedy. Epidemic. Disaster. Crisis. Before April 2018 even started, articles are already pouring, of people referring to their Autistic children as burdens, and alarmist rhetoric about how the number of us are supposedly increasing. The past 12 months have been filled with ableism and anti-autistic sentiment, from “To Siri With Love” to “Autism Uncensored”.
There is much more that can be said about the rhetoric in April, but other blogs have covered that adequately. My question is: how do we deal with it?
It’s heartbreaking that in a month where we are theoretically supposed to be accepted and loved, we are instead feared and further ostracized. It is appalling and deplorable that Autistics are sometimes so traumatized or afraid, we dread the thought of leaving our homes, with some of us going into hiding, even online.
“Awareness” turns into “beware-ness”: we exist, and that is scary and tragic. People are aware of Autism, but that doesn’t mean they understand it. Often, it is quite the opposite, especially in a culture dominated by neurotypicals and the pathology paradigm. Many of us get overwhelmed by the hate and fall apart or become reclusive. Sometimes it’s necessary. We need to take care of ourselves first, long before we can protest the anti-autistic vitriol flowing through April. But the two do not have to be mutually exclusive at all.
There are many “self-care” guides for Autistic and non-autistic individuals. However, many are either generic or unhelpful. In some cases, counterproductive. My view on self-care(for anyone), on the other hand, is much simpler: do what you love, and find what makes you happy. For Autistics, this can mean focusing on things that interest you; your passions. Or what non-autistics refer to as our “special interests”.
Our special interests are frequently referred to as “weird”, “unhealthy”, “obsessive”, or other derogatory terms meant to pathologize our existence. And I say, to hell with that. Those are words meant to oppress us, to prevent us from enjoying things as well as we do. Our interests bring us joy, and oftentimes end up highlighting our skills. They bring out the best in us, as they do with most people. And we must use that.
Self-care is not one concrete thing and making yourself feel better and happier is also not a concrete thing. It varies from individual to individual, and it is important to find whatever it is that makes you happy and do it.
When it comes to immersing yourself in your interests and passions, it leads into the other part of this survival guide: how you can turn self-care into a weapon of protest. Particularly during this month, I will openly speak about my interests and passions, no matter how unusual. We are often discouraged from doing so, lest we come off as “odd”. We are taught to be ashamed of having intense passions and interests.
“Awareness” has contributed to this. But it doesn’t have to stop us. On the contrary, focusing on our passions and special interests is, in my eyes, a double-score: we get to make ourselves happier by thinking about and doing what we love. And it in and of itself is a form of protest.
“Respect existence or expect resistance.”
This quote sums up my survival guide for “awareness” rhetoric throughout April. For all the hordes of people proudly displaying their desire for a world where we don’t exist, the best way to protest that is to be ourselves wholly and without compromise. It is hard, but it is worth doing. Simply being openly Autistic is in and of itself an act of resistance. We have been oppressed for long enough, and it is time to take a stand. We were never broken, and we will not go away for the convenience of others.
We are often forced to try to be more like allistics, to be someone we are not. That must end. As some would say, “living well is the best revenge”. If we can show people that despite all the hardships and struggles we face, we are capable of being happy and thriving, we can be the living defiance of the narrative that being Autistic is an all-out tragedy. We can display parts of us that we do like. In the process, we can wind up frustrating those who express anti-autistic sentiment.
There is another way we can protest simply by being ourselves: stimming… openly.
I have written about this before. Stimming is a universal trait within multiple species. Autistics may need to stim more due to a complex sensory perception, and the need to direct our focus. Stimming is something that is supposed to be both helpful, and a way to express ourselves through movement. And yet, it is vilified by non-autistic people.
We are made to suppress it through ABA, and taught to avoid it in most other situations, lest it come off as “weird”. But who cares about “weird”? If it brings you comfort and doesn’t harm anyone, it’s acceptable, and as far as I’m concerned, “weird” isn’t a bad thing at all.
Stimming brings us comfort and it brings us joy. It helps us deal with our pain. It helps us connect with the world and the universe around us in a unique, and special way. Most importantly, it is a form of self-expression. An Autistic person’s stims are as unique as them, and they deserve to be respected as such.
Stimming also happens to be one of the ways Autistic people are easily identified in public. If people have a hard time believing you are Autistic, flourishing your stims openly may persuade them before they have the chance to voice that.
Stimming openly is also a measure of defiance, in a society where Autistic expression is frowned upon. Stimming openly and without hesitation is one way we can enjoy ourselves, express ourselves, and defy cure-rhetoric.
In summation, two of the best ways to survive April as an Autistic person are to openly stim, and to express your passions and interests. Turn to the things you love for joy, even if they are forbidden. It has long been said that the best way to defy the anti-autistic narrative, and to spite your oppressors, is to be openly Autistic in front of them. To flaunt it, and to wear it with pride. Living as an Autistic person is one of the most defiant things you can do and is also the most gratifying.
That being said, it is important to take safety precautions. When it comes to openly stimming, apply your judgement and be careful doing so around law enforcement, or anyone with the power to do you serious harm. Remember to protect yourself first and foremost: know your limits, and apply your judgment to the best of your ability. You know how to take care of yourself best.
These ideas are not to be seen as solid instructions, but concepts to be molded, customized, and personalized to suit you. Withstanding April is hard for many Autistics, and I hope that these ideas bring comfort, hope, and amusement to some of you. Best of luck surviving, and fighting April.